Are all illnesses caused by our minds?

You cannot control how other people receive your energy. Anything you do or say gets filtered through the lens of whatever they are going through at the moment, which is NOT ABOUT YOU.

I met a new person this week who has me quite perplexed. After speaking to her for only a few minutes, she offered me quite a bit of advice. She diagnosed my problems as, “You need to get out of your head to attract good health and healing.” Her swiftness and certainty was disturbing and mildly annoying considering the fact she does not know me at all. She apparently believes all physical ailments are simply a manifestation of emotional problems. Solve those and the illness disappears. This left me wondering, if I told her I have lung cancer, would she recommend better counseling?

To deal with my confusion I spent some time today talking with my favorite health professional about my exchange with this self-defined “healer.” She first emphasized to me that there is no certainty in the field of medicine. That is why they call themselves “practitioners.” Even what may seem like a perfect diagnosis after months of testing and analysis still has no certainty. So for someone who describes herself as a “healer” to decide after just a few minutes of conversation that she knows how to “fix” me is absurd. That same health professional I once told to “Walk a mile in my shoes!” when she suggested that she knew how it felt to be constantly out of breathe while dealing with a severe head injury. Since then my friend has read and recommended the book: “My Stroke of Insight: A Brain Scientist’s Personal Journey” by Jill Bolte Taylor Ph.D., who experienced a massive stroke at age 37. Now I believe my friend has a much better understanding of what I deal with every single day.

Blaming the victim?

I never forgot an image from my counseling internship at a rehab hospital 25 years ago. I went in to speak to an elderly lady and the first thing she said was, “Why is this happening to me? Doesn’t God love me anymore?” In other words, what did I do to deserve this illness? First of all, we all will die of something. I do not believe we “cause” everything that happens to us. Did Jill Bolte Taylor, a Harvard-trained brain scientist, cause her own stroke? Did I choose or cause myself decades of bronchitis and extreme breathing difficulties? Did I somehow choose to almost die numerous times from hypoxia? What about genetics, air pollution, and my choice to live a stress-filled life in a number of foreign countries?

What do we hope for when we make ourselves vulnerable to others?

What I need from others when I tell them about my difficulties in breathing and concentration is caring concern, non-judgment and, most of all, compassion. I crave exactly what David Richo lists in his book “How to Be an Adult in Relationships.” Drawing on the Buddhist concept of mindfulness, David recommends we offer others our attention (observing, listening, and noticing the feelings at play), acceptance of them just as they are, appreciation of their gifts, limits, longings and affection.

After a lifetime of carefully observing how others respond to pain, I was disappointed with this recent acquaintance. Some run away from pain or change the subject. Others immediately try to “fix” me. When they suggest that they have simple answers to complex problems I have been dealing with for decades, I know they do not know of what they speak.

Lessons in disability & compassion in action

Oh the things we can learn when accidents happen. After a lifetime of glorious health, I am now learning how challenging physical disabilities can be. From a healthy 60 year old a few years ago, I have become breathless and often confused. That popular phrase “I can’t breathe!” is a daily reality for me now and these difficulties have led to numerous falls and concussions. I am now working with a pulmonologist and a neurologist for lung disease and post concussion syndrome that causes great dizziness at times.

What does illness and suffering teach us? Compassion for others who suffer. The first time I spoke directly to Mike (my husband of 16 years) after meeting him through Match.com, he told me he suffered from Chronic Fatigue Syndrome (CFS). At that time I hadn’t the slightest idea what that was or how it might impact our lives. At first he tried to hide some of his symptoms from me, avoiding me when he felt especially bad. It was only later that I learned the crushing cruelty of this at-that-time undiagnosable disease that haunted Mike for decades. He went from a strong 35 year old who could run up mountains, to chronic fatigue that worsened with physical activity, but did not improve with rest, difficulties with memory, focus, concentration and dizziness that worsened with any movement from lying down, sitting or standing. Imagine how depressing that would be for you. And worse, few physicians would believe him. They showed no compassion and would simply say, “You’re just depressed” or “See a psychiatrist.” From this, Mike learned deep compassion for those who suffer with unexplainable illnesses and disabilities. This quote from Gandhi describes Mike’s life perfectly now:

“The best way to find yourself is to lose yourself in the service of others. The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problem.” – Mahatma Gandhi

One of my favorite sayings has been this for decades:

and Guanyin, the Chinese Goddess of Mercy, my daily reminder of compassion in action.

These are some of the most important lessons we can learn in life, and we are learning them well

One of my favorite movies EVER!

Raised in small towns in Iowa and Kansas, my first memories of Asia were greeting my Dad when he returned from his regular journeys to India. He always brought back beautiful souvenirs and slides to show us. As a child, the strangeness of this very different culture halfway around the world, fascinated me. I was also introduced to Indian music and food very early. To this day they are my favorites!

This is all to show you why I fell in love with the film “The Namesake” at first sight this week. The music, from the very beginning, with Tabu’s incredible voice(!), is exquisite. I couldn’t help but wish that this experience came with a lovely, big Indian meal. Mira Nair is my new favorite director. I must see more of her films! But what struck me the most was the emotional depth of her style of storytelling and the beauty of the people of India. That and how much I was drawn to the actor Irrfan Khan, who died this year at 53. He was truly “distinguished and charismatic” and “an enormously valuable bridge between South Asian and Hollywood cinema,” according to Peter Bradshaw of the “The Guardian.” I also loved him in the film “Puzzle” from 2018.

Coming to America….

The story is quite simple. The Namesake depicts the struggles of Ashoke and Ashima Ganguli, first-generation immigrants from West Bengal to the United States, and their American-born children Gogol and Sonia. The film takes place primarily in Kolkata India and the New York City area. I was constantly reminded of generational differences in my own family growing up, as this first generation American family struggled with the different cultures of India and America. And we thought our Dad didn’t understand our generation! Imagine what is must be like if your parents are from a culture a world away.

The film is also an excellent example of the contrasts between Eastern and Western cultures. The East is far more family and community oriented. They find Americans self-centered and even selfish. In the West we do what we please, especially when we are young. Family may become important later for us. I found this film to be a commentary on the toxic loneliness of American society today.

Northern Thailand, 1973

Ever since I lived in Bangkok in 1973-74, I have found Asia to be so different and yet so fascinating. As a teenager I felt almost like I had gone to the moon, everything was just so different compared to Kansas and Colorado. In college, graduate school and in my career as a librarian, I worked to bring these two worlds closer together in the eyes of Americans…

but now I can see that movies like this do the most for us all to truly understand and appreciate our own shared humanity. There is no world that needs this more now than the human race. I found this film so soothing…

Please prepare now for unexpected outcomes

I’m sad to learn that my friend Rena Kaplowski died yesterday, even though she went the way she wished, in her sleep. Her passing has been a bit of a wakeup call for me and perhaps should be for millions of us. Rena had just turned 67 when she suffered a devastating stroke. Weeks of unconsciousness and intensive care followed, and she had just been moved to a rehab center when she passed.

Rena had not signed an advance directive form like Five Wishes which allows each of us to guide important medical care decisions that might be made if we should become seriously ill, decisions like whether we would like to be given life-support treatments. You may think that your loved ones and doctors will know what you want when you are very ill, but in reality, everyone has different wishes and it’s important to make them clearly known. Expressing your wishes in an advance directive helps to empower your family and other loved ones, and your doctor to make the best decisions when the time comes, and avoid disagreements about what to do next. Completing a form like “Five Wishes” can help you and your loved ones gain peace of mind around difficult end-of-life decisions.

The best time to fill out an advance directive form is now, before you face a health crisis. Because life is unpredictable, it’s best to be prepared. Anyone over the age of 18 can use the “Five Wishes” form. It is also a good idea to review and possibly update your Five Wishes advance directive when you experience significant life events like marriage, divorce, having children, or being diagnosed with a major illness. “Five Wishes” was written with the help of the American Bar Association’s Commission on Law & Aging and is used widely in all 50 states. Federal law requires medical care providers to honor patient wishes as expressed.

Remember, you will always make your own health care decisions if you are able to talk with your doctor and understand what is being said. This directive only takes effect when you are too ill to understand or communicate. If you are unable to make your own decisions or speak for yourself, an advance directive and the person you chose to be your healthcare agent, can help direct your care with your doctor.

See “The Cotton Club” Encore Edition!

I don’t know how I missed it, but this old movie from 1984 is fabulous, especially if you love 1930s music and watching Gregory Hines dance! Come to think of it, I didn’t even have a TV or go see films much in the 1980s. I was busy learning Chinese and getting degrees I would never use… But this film was so much fun for me yesterday!

For me, the most interesting aspect of this movie was the way it called attention to extreme early racism in Harlem and how those with power drew the line between black and white. Opened in 1923, the Cotton Club on 142nd St & Lenox Ave in the heart of Harlem, was operated by white gangster Owney Madden. Madden used the Cotton Club as an outlet to sell his “#1 Beer” to the prohibition crowd.

The Club was decorated with the idea of creating a “stylish plantation environment” for its entirely white clientele. As with many New York City clubs of the time period, that meant the upper class of the city. The Cotton Club at first excluded all but white patrons although the entertainers and most of staff were African American. Dancers at the Cotton Club were held to strict standards; they had to be at least 5’6” tall, light skinned with only a slight tan, and under twenty-one years of age.

The oppressive segregation of the Cotton Club was reinforced by its depiction of the African American employees as exotic savages or plantation residents and the music was often orchestrated to bring to mind a jungle atmosphere. By transforming the club into this plantation atmosphere and bringing in celebrities, Owney Madden created a demand for the Cotton Club while also helping to perpetuate widely held negative stereotypes about African Americans.

This film also got a lot of relatively new actors noticed like Bob Hoskins, Richard Gere, Gregory Hines, Diane Lane, Nicholas Cage, Laurence Fishburne, and Tom Waits(!) to name a few. I loved the music, the dancing, and the story, plus I learned quite a bit about how racism worked in Harlem in the 1930s!

A personal note: I have been noticing the age difference between the romantic lead actors in older movies lately. In this case the age difference between Richard Gere and Diane Lane is 16 years! Talk about robbing the cradle…

Do you ever write anything personal any more?

I was astounded by this statistic on CBS Sunday Morning today:

22% of Americans under age 45 have never written a personal letter

When I think back to the many personal, intimate exchanges I had with past friends and lovers, I simply cannot believe that we no longer communicate on that level and in that way. I still have and treasure letters from old boyfriends in my twenties and thirties. It makes me sad, but also amazes me that this no longer happens.

“In the future old ‘love letters’ may not be found in boxes in the attic but rather circulating through the Internet, if people care to look for them,” said Webster Newbold, a professor of English at Ball State University in Muncie, Ind.

Consider this, we are experiencing a loss in what people in the future will know about us. The loss is incalculable. In earlier times the “art” of letter writing was formally taught, explained Newbold. In fact, in old China a person’s character was judged by the strength of their letter writing abilities.

“Letters were the prime medium of communication among individuals and even important in communities as letters were shared, read aloud and published,” he said. “Letters did the cultural work that academic journals, book reviews, magazines, legal documents, business memos, diplomatic cables, etc. do now. They were also obviously important in more intimate senses, among family, close friends, lovers, and suitors in initiating and preserving personal relationships and holding things together when distance was a real and unsurmountable obstacle.”

Aaron Sachs, a professor of American Studies and History at Cornell University, said, “One of the ironies for me is that everyone talks about electronic media bringing people closer together, and I think this is a way we wind up more separate. We don’t have the intimacy that we have when we go to the attic and read grandma’s letters.”

I have found through the years that writing helps me realize more clearly how I feel, and what I really need to say to those I love. The process allows me to crystallize my thoughts, and then tell the other my most intimate feelings. Is that practice also gone? Will there be no physical record of any of this in our future? This more than most changes to our culture makes me glad that my days on earth are minimal.