Traumatic Brain Injury

“Words” from a Broken Brain

/ Laura Lee Carter / 10 Comments

For as long as I can remember, I have always loved words. Even before I learned English, I made up my own language to communicate with my cat and doll. Words meant so much to me. They seemed like magic. With the right words you might get others to understand your most important and secret feelings. With words you could begin to understand other peoples’ worlds. They were the key to everything!

As I grew I kept loving them more and more. Even though, or perhaps because, I was a book worm at heart, words were my own kind of magic. So I read everything I could, especially about other women’s lives. I wondered how they made it through the difficult world I saw outside my door. Words were my key to understanding my world. Then I learned how words could resolve misunderstandings and bring people closer together, another form of word magic. I always wanted to learn more.

Eventually I became a librarian with a whole building full of words. So many stories from all over the world, explaining why we do the things we do. I wanted to learn everything in those books! I began to wonder if I might write a book someday, but then I would find a book that expressed my ideas or feelings better than I could and say, “See, I hasn’t meant to be a writer.”

My own version of a midlife crisis at age 49 changed my mind. I felt like I had to write to understand and explain to others what I was experiencing. This phenomenal transition was too important for others to miss out on. That is when I became a writer. I started a blog that took off, with thousands of followers who seemed to understand what I was talking about. Words helped me to expand my world, all around the world! I had friends in Europe, Asia and Australia who understood the exceptional opportunity of changing everything in midlife.

Since then much has changed in my life. A traumatic brain injury in 2008 began to stand in the way of my wonderful relationship with words. I did get back to writing and still loved it, but then I learned, through a few concussions, that I needed to live on oxygen fulltime. And the concussions took their toll. Now I can only properly handle fewer and fewer words. A conversation with another can only go on for an hour or so before my brain gets tired and needs some silence to rest up for more time with others. Some days I have trouble remember the most basic words, like yesterday I had a hard time remembering the word for “dimples.”

For all of these reasons I will not be writing here much longer. My joy in writing is diminishing slowly. The concentration required seems to hurt my mind, especially being on the computer so long. After writing something like this I have to stare off into space for a while to recuperate.

But I do still love words and will continue that relationship for as long as I live. And I will also continue to admire when other writers get it so right. I believe this writer got it right in describing my favorite vision of life after death:

“There is a moment when your dreams and memories merge together to form a perfect world. That is heaven. Each heaven is unique. This is the world of you. The land is filled with all you hold dear, and the sky is your imagination.” – From the end of the movie “1883” written by Taylor Sheridan

Not age limits. Let’s use neuropsychological tests

/ Laura Lee Carter / Leave a comment

Did you know that our country was one of the first in world history to create and do psychological testing on our candidates for military service in World War I? When you are fighting right next to others in trenches, mental stability is quite essential. Psychological and neurological testing is used in numerous ways today to qualify candidates for all kinds of jobs, why not for the most important jobs in the world?

Neuropsychological Testing is a test to measure how well a person’s brain is working. The abilities tested include reading, language usage, attention, learning, processing speed, reasoning, remembering, problem-solving, mood, and more.

With all the talk about age and abilities around our presidential candidates, etc. I would like to explain why age is not necessarily the issue here. Candidates like Donald Trump refer to terms like mild cognitive impairment (MCI) as if we had no way to impartially test for these problems without prejudice. There are excellent ways to test this. I know because I was tested recently.

I had one of these two hour tests last year, administered by a consulting neuropsychologist. Areas tested include attention and processing speed, verbal memory, visual memory, executive function, constructional praxis, apathy, depression, anxiety and sleep. My first observation was how exhausting it was for my brain. I had to sleep for a day afterwards to recover. But I already knew my worst problem was how quickly my brain wears out, and when it’s tired there no solution but rest. I also learned that as a person with mild cognitive impairment, I should not be working or running for any office.

I am certain the American public would benefit by testing such important personages as candidates for president and Congress in this way. What most do not understand and what I had to find out the hard way is that a person’s ability to serve is certainly not about age. It’s about cognitive strength or impairment. We have great tests for that. Let’s use them.

Finding the Strength to Let Go of Self

/ Laura Lee Carter / 3 Comments

I believe our lives are a process of finding and confronting our true Self, and then slowly letting go of it as we age. Some might prefer the word ego in this scenario. I have had this message on my wall for decades:

What is the ego or sense of Self?

ego: a person’s sense of self-esteem or self-importance, the part of the mind that mediates between the conscious and the unconscious and is responsible for a sense of personal identity.

The way I relate to my sense of Self is to know that as a child and young adult my ‘job’ was to develop my sense of who I was inside, what did I think and value? How should I treat others? How did others see me? This naturally leads to a strong sense of self-consciousness, sometimes painfully so. Then came the time to figure out what I planned to do in the world. How did I hope to change my world? These are the purposes of young adulthood up until our forties or so.

Developing a strong sense of self or ego is a good and necessary part of being human. There is nothing wrong with having a strong ego, but it needs to be regulated. Problems arise when ego affects your decision making process, turning you into a victim, or when it makes you feel superior to others in order to justify your bad behavior. A toxic ego is one that does not learn from bad behavior, but instead blames others, often descending into negativity, resentment, and even violence.

For the past twenty years, my spiritual path has been that of the second part of life. I have been searching for the strength to let go of self. A part of this process is simply getting comfortable with self compassion and death. Although we might think we have a strong sense of self when we are younger, if we are very honest we may find much self-criticism inside. This is all a part of the ego. Like we really did have the power to change any part of our world…

Being close to nature is your best path to realizing your place in the history of time. Please note, there are no other animals or plants that believe they are changing the world. There are no other beings that fear death. They know what their part is, to be born, to live and then die. I have found a gradual process of getting used to the idea of death is the best path for me. At first is was so hard to be with so I would push it away and deny its power. Since I started facing some powerful signs that I won’t be around forever (lung disease and brain injuries) in the past few years, my acceptance has grown like my garden outside my door, bright and beautiful.

March is Brain Injury Awareness Month

/ Laura Lee Carter / 5 Comments

There isn’t a lot I can do to “change the world” these days, but one area that I have too much experience with is serious brain injuries and how they can change your world. So this month I will try to educate everyone a bit about what I have learned on this topic.

A traumatic brain injury (TBI) is one where you lose consciousness for a period of time and often have a bleed in your brain afterwards. It is a sudden injury that causes damage to the brain and may happen when there is a blow, bump, or jolt to the head. This is a closed head injury. A TBI can also happen when an object penetrates the skull. This is a penetrating injury. In my case I fell head first off of my bike while riding downhill. I was unconscious off and on for hours afterwards along with fractured ribs, a thigh injury, a wrist injury, and spent 24 hours in the ER and the hospital neuro-unit under observation. At the time I could not stand up without passing out.

How long does it take to fully recover from a TBI?

Depending on the severity of the injury, recovery time for a TBI may vary from a few weeks to six or more months. Each person reacts differently to injury and illness. Thus, recovery time will vary between individuals. The length of recovery time for TBI depends on how long a patient is unconscious and what parts of the brain are injured.

Are patients ever the same after a TBI?

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

My experience:

I would say it took a few years for me to feel “normal” again after my TBI in 2008. My main form of rehabilitation was writing books, reading a lot and maintaining my blogs.

Unfortunately, I have been prone to falls and further head injuries since then. I fell again with serious concussions in 2015, 2019 and 2021. My most recent concussion was most serious and caused permanent balance, memory and vertigo problems. I now use research, writing and game shows like Jeopardy to spur my memory and keep me sharp. I also love old movies, soft music, and nature shows on PBS. They really soothe my brain.

Does TBI affect IQ?

In the end, a brain injury does not make a person less intelligent. It does, however, make certain mental activities, such as learning, require more time and effort. This is because the brain works less efficiently after a brain injury.

My biggest pet peeve around my present condition is that others may look at me and assume I’m not quite all there. I am definitely as smart as I used to be, it just takes me longer to arrive at the answers. I do have trouble getting around because of my oxygen machine, but that doesn’t mean that I am someone to feel sorry for. I do not feel sorry for myself.

I think I have a great life here with Mike and my puppy Rasta, and this fantastic view of those beautiful Sangre de Cristo Peaks.

A Different Kind of Mind

/ Laura Lee Carter / 1 Comment

Somehow I never pictured myself breathless and brain damaged at age 67. ‘Disabled’ did not occur to me ever, until things started happening to me. It took me an amazing length of time to believe that I was having trouble breathing. In fact, I didn’t discovery it myself. A very observant MD in Colorado City turned to me once when we were there for Mike’s health and said, “Are your lips turning blue? Let’s do a walking test.” For those unaware, a walking test is a simple walk around a doctor’s office where they test your O2 level before and after your block-long walk. I flunked, dipping far below 90 and yet I still insisted this could not be happening to me. Recently we went through the same test with my brother John, and yes, he denied it, and now he’s enjoying his supplemental O2.

My point is, unless you are literary hit over the head with a new disability (like a head injury?) it is very hard to accept that you may have a big new problem. I struggled against using oxygen at home for quite a while. I simply could not believe it, plus we Carters are known for extreme stubbornness. Now I can only go a couple minutes without it.

The head injuries started in my fifties and who knows, perhaps they were connected with shortness of breath. I know my most recent concussion were related to being out of breath. I went to look for something, forgot my oxygen, and ended up passed out for the floor. Unfortunately Mike was gone for a few days so when I came to I had to crawl over to my bed and get up there to lay down. I never forgot my oxygen again!

The aspect of disability I find both surprising and annoying is when others find it natural or even necessary to feel sorry for me. Some old friends have even stopped communicating with me. Talk about feeling written off! When I heard there is a new TV show called “Not Dead Yet” I thought, that’s me!

What I would like to share with all of you who think I’m done or doomed (aren’t we all?) is that, yes, my brain has changed, but sometimes it feels like it might be for the better.

I know I may have sometimes sounded pathologically optimistic here, but these days I rather enjoy my present state of mind. When I’m sitting staring out at our incredible views of the Sangre de Cristo mountain range, which I do a lot of, there is a certain non-reality that is a bit like being high without drugs. That I like. I also believe that in some strange way I may have become less judgmental and more intelligent by exchanging certain parts of my brain for a less precise and exacting attitude. Call it more flexible or easygoing, but I find that soothing. Perhaps my brain got tired of holding grudges.

Of course living with Mike has helped me a lot. I am definitely the worrywart in this partnership. We Carters are first-class worriers, expertly trained by a number of previous generations. I will never forget a few years ago when I was sitting in the living room listing my well-established list of worries for Mike. He had heard this list too many times, and I guess he was tired of it, so this time he sat back in his easy chair and said, “Who cares! Is worrying about these things going to change anything?” That made a lot of sense to my bruised and shaken brain…

How writing can improve your mood and keep your brain moving forward…

/ Laura Lee Carter / 6 Comments

In the process of writing my last post about AI and writing, I learned quite a bit about exactly how good writing is for our brains. First of all I learned that writing by hand is better for the brain than typing. Although a slower task, research indicates that physically writing things down appears to make the writer become more selective in what they write. What’s more, when you pen words on paper, the neurons in your brain fire signals at rapid speed, enabling you to make more neural connections.

Writing is a stimulating yet strenuous activity for the brain. When you write, all parts of your brain are actively engaged. Thanks to the brain’s neuroplasticity, it can grow and change over time. Just as athletes train their bodies, writers can do the same with their brains.

The process of recalling something, writing it down, and reading it back on paper boosts memory and comprehension, leading to improved cognitive processing. Given that many areas of the brain are engaged, the more you write, the more neural connections are formed within your brain.

Writing every day can benefit everyone, not only professional writers. It improves your memory, builds vocabulary, and refines your communication skills. Writing can also be very relaxing, especially if you lead a busy or stressful life.

When it comes to emotional stability and development, writing can be quite therapeutic. Writing gives some structure and organization to anxious thoughts and feelings. It can help the writer feel more in control of their negative moods, thus helping them get past suppressed difficult or traumatic events.

I have always been a avid writer since I first learned how. Writing is my way to have someone to talk to about difficult thoughts or feelings, a way to process my feelings to make me feel better. These days I find writing to be essential to both my mental health and brain health. Although I sometimes find it quite challenging for my brain, I do need this challenge to keep moving forward after a few serious head injuries.

5 Surprising Benefits of Writing by Hand