Traumatic Brain Injury

Finding the Strength to Let Go of Self

/ Laura Lee Carter / 3 Comments

I believe our lives are a process of finding and confronting our true Self, and then slowly letting go of it as we age. Some might prefer the word ego in this scenario. I have had this message on my wall for decades:

What is the ego or sense of Self?

ego: a person’s sense of self-esteem or self-importance, the part of the mind that mediates between the conscious and the unconscious and is responsible for a sense of personal identity.

The way I relate to my sense of Self is to know that as a child and young adult my ‘job’ was to develop my sense of who I was inside, what did I think and value? How should I treat others? How did others see me? This naturally leads to a strong sense of self-consciousness, sometimes painfully so. Then came the time to figure out what I planned to do in the world. How did I hope to change my world? These are the purposes of young adulthood up until our forties or so.

Developing a strong sense of self or ego is a good and necessary part of being human. There is nothing wrong with having a strong ego, but it needs to be regulated. Problems arise when ego affects your decision making process, turning you into a victim, or when it makes you feel superior to others in order to justify your bad behavior. A toxic ego is one that does not learn from bad behavior, but instead blames others, often descending into negativity, resentment, and even violence.

For the past twenty years, my spiritual path has been that of the second part of life. I have been searching for the strength to let go of self. A part of this process is simply getting comfortable with self compassion and death. Although we might think we have a strong sense of self when we are younger, if we are very honest we may find much self-criticism inside. This is all a part of the ego. Like we really did have the power to change any part of our world…

Being close to nature is your best path to realizing your place in the history of time. Please note, there are no other animals or plants that believe they are changing the world. There are no other beings that fear death. They know what their part is, to be born, to live and then die. I have found a gradual process of getting used to the idea of death is the best path for me. At first is was so hard to be with so I would push it away and deny its power. Since I started facing some powerful signs that I won’t be around forever (lung disease and brain injuries) in the past few years, my acceptance has grown like my garden outside my door, bright and beautiful.

March is Brain Injury Awareness Month

/ Laura Lee Carter / 5 Comments

There isn’t a lot I can do to “change the world” these days, but one area that I have too much experience with is serious brain injuries and how they can change your world. So this month I will try to educate everyone a bit about what I have learned on this topic.

A traumatic brain injury (TBI) is one where you lose consciousness for a period of time and often have a bleed in your brain afterwards. It is a sudden injury that causes damage to the brain and may happen when there is a blow, bump, or jolt to the head. This is a closed head injury. A TBI can also happen when an object penetrates the skull. This is a penetrating injury. In my case I fell head first off of my bike while riding downhill. I was unconscious off and on for hours afterwards along with fractured ribs, a thigh injury, a wrist injury, and spent 24 hours in the ER and the hospital neuro-unit under observation. At the time I could not stand up without passing out.

How long does it take to fully recover from a TBI?

Depending on the severity of the injury, recovery time for a TBI may vary from a few weeks to six or more months. Each person reacts differently to injury and illness. Thus, recovery time will vary between individuals. The length of recovery time for TBI depends on how long a patient is unconscious and what parts of the brain are injured.

Are patients ever the same after a TBI?

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

My experience:

I would say it took a few years for me to feel “normal” again after my TBI in 2008. My main form of rehabilitation was writing books, reading a lot and maintaining my blogs.

Unfortunately, I have been prone to falls and further head injuries since then. I fell again with serious concussions in 2015, 2019 and 2021. My most recent concussion was most serious and caused permanent balance, memory and vertigo problems. I now use research, writing and game shows like Jeopardy to spur my memory and keep me sharp. I also love old movies, soft music, and nature shows on PBS. They really soothe my brain.

Does TBI affect IQ?

In the end, a brain injury does not make a person less intelligent. It does, however, make certain mental activities, such as learning, require more time and effort. This is because the brain works less efficiently after a brain injury.

My biggest pet peeve around my present condition is that others may look at me and assume I’m not quite all there. I am definitely as smart as I used to be, it just takes me longer to arrive at the answers. I do have trouble getting around because of my oxygen machine, but that doesn’t mean that I am someone to feel sorry for. I do not feel sorry for myself.

I think I have a great life here with Mike and my puppy Rasta, and this fantastic view of those beautiful Sangre de Cristo Peaks.

A Different Kind of Mind

/ Laura Lee Carter / 1 Comment

Somehow I never pictured myself breathless and brain damaged at age 67. ‘Disabled’ did not occur to me ever, until things started happening to me. It took me an amazing length of time to believe that I was having trouble breathing. In fact, I didn’t discovery it myself. A very observant MD in Colorado City turned to me once when we were there for Mike’s health and said, “Are your lips turning blue? Let’s do a walking test.” For those unaware, a walking test is a simple walk around a doctor’s office where they test your O2 level before and after your block-long walk. I flunked, dipping far below 90 and yet I still insisted this could not be happening to me. Recently we went through the same test with my brother John, and yes, he denied it, and now he’s enjoying his supplemental O2.

My point is, unless you are literary hit over the head with a new disability (like a head injury?) it is very hard to accept that you may have a big new problem. I struggled against using oxygen at home for quite a while. I simply could not believe it, plus we Carters are known for extreme stubbornness. Now I can only go a couple minutes without it.

The head injuries started in my fifties and who knows, perhaps they were connected with shortness of breath. I know my most recent concussion were related to being out of breath. I went to look for something, forgot my oxygen, and ended up passed out for the floor. Unfortunately Mike was gone for a few days so when I came to I had to crawl over to my bed and get up there to lay down. I never forgot my oxygen again!

The aspect of disability I find both surprising and annoying is when others find it natural or even necessary to feel sorry for me. Some old friends have even stopped communicating with me. Talk about feeling written off! When I heard there is a new TV show called “Not Dead Yet” I thought, that’s me!

What I would like to share with all of you who think I’m done or doomed (aren’t we all?) is that, yes, my brain has changed, but sometimes it feels like it might be for the better.

I know I may have sometimes sounded pathologically optimistic here, but these days I rather enjoy my present state of mind. When I’m sitting staring out at our incredible views of the Sangre de Cristo mountain range, which I do a lot of, there is a certain non-reality that is a bit like being high without drugs. That I like. I also believe that in some strange way I may have become less judgmental and more intelligent by exchanging certain parts of my brain for a less precise and exacting attitude. Call it more flexible or easygoing, but I find that soothing. Perhaps my brain got tired of holding grudges.

Of course living with Mike has helped me a lot. I am definitely the worrywart in this partnership. We Carters are first-class worriers, expertly trained by a number of previous generations. I will never forget a few years ago when I was sitting in the living room listing my well-established list of worries for Mike. He had heard this list too many times, and I guess he was tired of it, so this time he sat back in his easy chair and said, “Who cares! Is worrying about these things going to change anything?” That made a lot of sense to my bruised and shaken brain…

How writing can improve your mood and keep your brain moving forward…

/ Laura Lee Carter / 6 Comments

In the process of writing my last post about AI and writing, I learned quite a bit about exactly how good writing is for our brains. First of all I learned that writing by hand is better for the brain than typing. Although a slower task, research indicates that physically writing things down appears to make the writer become more selective in what they write. What’s more, when you pen words on paper, the neurons in your brain fire signals at rapid speed, enabling you to make more neural connections.

Writing is a stimulating yet strenuous activity for the brain. When you write, all parts of your brain are actively engaged. Thanks to the brain’s neuroplasticity, it can grow and change over time. Just as athletes train their bodies, writers can do the same with their brains.

The process of recalling something, writing it down, and reading it back on paper boosts memory and comprehension, leading to improved cognitive processing. Given that many areas of the brain are engaged, the more you write, the more neural connections are formed within your brain.

Writing every day can benefit everyone, not only professional writers. It improves your memory, builds vocabulary, and refines your communication skills. Writing can also be very relaxing, especially if you lead a busy or stressful life.

When it comes to emotional stability and development, writing can be quite therapeutic. Writing gives some structure and organization to anxious thoughts and feelings. It can help the writer feel more in control of their negative moods, thus helping them get past suppressed difficult or traumatic events.

I have always been a avid writer since I first learned how. Writing is my way to have someone to talk to about difficult thoughts or feelings, a way to process my feelings to make me feel better. These days I find writing to be essential to both my mental health and brain health. Although I sometimes find it quite challenging for my brain, I do need this challenge to keep moving forward after a few serious head injuries.

5 Surprising Benefits of Writing by Hand

Will new AI programs replace the art of writing?

/ Laura Lee Carter / 3 Comments

OpenAI’s artificial intelligence writing program ChatGPT can compose poetry, prose, song lyrics, essays, even news articles. That has ethicists and educators worried about the program’s ease at replacing human ideas with chatbot-generated words. I can already hear the concerns of educators. What about the process of writing your first term paper? Isn’t that an important part of learning?

In the history of our species there have been a number of reasons to create writing so we could record history. The first hieroglyphics were used by Egyptian priests to record important events like wars or stories about their gods and Pharaohs. These were also used to decorate temples and tombs. Writing has been used to communicate with future generations, entertain others as art (poetry, plays, prose, stories), for history and business. For most of these purposes an AI program would have sufficed to communicate. Most of us may not need to learn how to write a poem, an essay or a term paper if we have no interest and we will never need that skill again. The skill we all need and seems to be sorely lacking in our world today is critical thinking.

For most, writing a term paper may be a useless exercise, but for some of us, writing is a lifeline to sanity. I have made a practice of keeping journals my entire life. This practice of self-analysis has always helped me think through what I am experiencing and process the reasoning behind my choices, my way of delving into something I want to know more about within myself.

Now, after a few serious brain injuries, writing is my lifeline to my former self; how I connect the two worlds, the person I used to be and who I am today. My fine mind has served me well, but now it is exhausting and confusing for me to sit down at my computer and put ideas and feelings together in writing, and yet I believe this is an essential exercise in me still being me. No AI program can do this for me, and it is so worth the effort.

The process of creating is vital to the human brain. Films, music, books, poems, works of art can all be programmed into AI today, but should they be? What about the lived experience of each of us? What about the emotions of living a life?

Writing was created for a purpose, and it has served humanity in so many ways. I feel certain that will continue.

Cognitive Impairment & Dementia Past Age 60

/ Laura Lee Carter / 10 Comments

I’ve been busy lately learning more about “mild cognitive impairment” (MCI) and dementia for myself, my mom and my brother. I was diagnosed in August with MCI by taking a two hour test from a Licensed Clinical Psychologist. This means that compared to others my age, I show some signs of cognitive impairment in a few different areas, mostly in short-term memory. These findings did not surprise me a bit considering my long history with TBI and concussions. In fact I wondered why I bothered with the tests afterwards, because they were so exhausting!

Then a few weeks ago my brother John started complaining of terrible brain fog. He could barely function some days, but it usually became less difficult as the day went on. He ended up sleeping a lot because he couldn’t do much else. I got so worried about him that I called our local hospice people. They were kind enough to come over and speak to John this week. They said he was doing OK and not ready for hospice assistance.

I saw an article in Science Daily recently that says:

“In the first nationally representative study of cognitive impairment prevalence in more than 20 years, Columbia University researchers have found almost 10% of U.S. adults ages 65 and older have dementia, while another 22% have mild cognitive impairment.” in the article:

“One in 10 older Americans has dementia” in Science News, October 24, 2022

Apparently John and I are not alone. In fact I have learned:

“Americans born between 1948 and 1965 are more likely than the generations that preceded them to have multiple health problems as they age. Many develop two or more health conditions up to 20 years sooner than folks from other generations…” according to the article “Cohort Trends in the Burden of Multiple Chronic Conditions Among Aging U.S. Adults” in the June 2022 issue of The Journals of Gerontology

Basically just about everyone in my direct family is dealing with some version of memory loss or MCI, and I am including my 14 year old dog Rasta. None of us are in great shape at the moment. We survive by reminding each other of appointments, etc. My Mom refused memory testing, but her ability to remember has been fading quickly since my Dad died in 2020.

One thing I did learn from my psychologist is that there is now a saliva test to detect the presence of the genetic APOE4 variant, which is associated with increased risk of late-onset (age >60-65) Alzheimer’s disease. 

Here’s a link: https://www.alzheimersorganization.org/product-page/apoe-genetic-test

Of course the next question is, do I really want to know?