Observing two different dementia experiences

I just realized yesterday that in the past few years my sister and I have been witnessing two different dementia experiences up-close and personal. Since my father’s death in March 2020, both our mother and our brother have been slowly losing touch with reality. While my sister has taken care of our mother in a “quality” assisted living facility in Denver, Mike and I have been doing our best to assist my brother in a small rural town in southern Colorado. Another aspect of these different experiences is that my mother has retirement funds to spend on her care, while my brother receives all of his care through us, Medicare, and Medicaid.

Our brother John, Christmas 2021

The experience I am most familiar with is that of my brother. He came here at the end 2020 from a lean-to he had been living in near Oak Creek north of Sedona for a number of years. He knew he could no longer live that life with no assistance if he needed it. He had a few health problems then, but he was generally doing well. Since then he has started on supplemental oxygen and various other drugs and supplements. Only in the past year of so has he begun complaining constantly of “total brain fog” and terrible memory lapses.

Our mother (on right) at my father’s 90th birthday party, February 2019

Since our Dad died in 2020, right before the “COVID years,” Mom was forced to live alone for a while. She entered assisted living two years ago as her memory continued to fail her. Hers seems to be more like classic Alzheimer’s disease with gradual memory loss. She no longer cares how she looks or what she wears, and only occasionally reflects on her many losses. However, she is still quite aware that her memory is failing her. This really is the long goodbye for us…

Luckily my sister and I have each other and our husbands to share our concerns and losses, but it is still quite a challenge to watch our family fall apart before our eyes. As my sister says, with her decades of experience in the fields of long term care and gerontology,

“Everyone tells you that aging is tough, but you don’t really get it until it happens to you…”

Health consequences I wish I had known about when I was younger…

Dad Laura Diane and John small January 1961

MY DAD WITH US KIDS ON AN OUTING IN IOWA AROUND 1960

Back when I was a kid in the 1950s and 60s, so many well known facts about health consequences were not common knowledge. For example, we didn’t even think about providing sunglasses to children, and I don’t remember ever hearing of anything called sun screen.  We used suntan lotion instead to increase the sun damage! Good thinking, huh? I had a friend in high school who skipped school at the hottest part of the day just to really burn her skin.

Even in my late teens, when I was fortunate enough to spend a few months in southern Thailand, I used no sun screen. Today I have plenty of sun damage on my face, neck and chest to show for my bad judgment back then. And guess what? Sun damage is so obvious and UGLY as you age, not to mention so many wrinkles! I also damaged the retina at the back of one eye by having light colored eyes and not protecting them better. Now I have to wear dark sunglasses or I get headaches.

Another painful consequence for me, one I’m just beginning to realize in the past few years is shoulder, elbow and hand damage from overuse of my right arm. Sure, I know so much computer use in the past forty years hasn’t helped a bit, but I can highly recommend to those younger than me to not over use one side of your body. My left side seems brand new while my right arm, hip and knee complain constantly. Start to raise awareness right now how much you may depend on one side of your body for everything, and switch it up as soon as you can! Don’t wait until it hurts to use your right arm to realize you also have a left arm.

Something many boomers are realizing too late is how important good posture is while sitting and especially driving. Those who drive for a living in various careers can and do get stuck in one position for life. Notice how you sit and move even if it seems unconscious. Start doing stretches every day to combat being stuck in certain postures. Yoga is a great start to maintain spinal and upper body flexibility. Don’t wait. Do it NOW.

We also had no routine screenings for diseases like breast cancer and colon cancer when I was young. My Mom had to find her own breast lump in her thirties and for that reason she is still with us today. Mike’s Mom didn’t know about colon cancer and died at age 53. Do those screenings on a regular basis. They save thousands of lives every year.

I learned a little too late how to protect my brain properly. I realize now I am not alone in the bike accident department, especially past age 50. Balance and head injuries are not the same past age 50. If I had hit concrete instead of dirt headfirst back in 2008, I wouldn’t be here today. As it is, I was unconscious for hours afterward and don’t remember most of it. Today I live with extra brain challenges every single day because of one stupid mistake. Writing is one of the ways I meet these challenges.

mediterranean diet foods

And as crazy as it might seem, something I didn’t know when I was young, food truly is your best medicine. If you start out eating a wide variety of natural foods from birth instead of processed junk, you will thank yourself decades later. It is actually difficult to overeat real foods like eggs, dairy, nuts, lean meat, vegetables and fruit. Learn how to listen to your body and you will be less likely to stress eat instead of eating only when actually hungry.

Learn to love a few different types of exercise and do them for the rest of your life. Walking always makes me feel better mentally and physically. Gardening also keeps me active and happy. Find your favorite activities and keep improving every day of your life.