March is Brain Injury Awareness Month

There isn’t a lot I can do to “change the world” these days, but one area that I have too much experience with is serious brain injuries and how they can change your world. So this month I will try to educate everyone a bit about what I have learned on this topic.

A traumatic brain injury (TBI) is one where you lose consciousness for a period of time and often have a bleed in your brain afterwards. It is a sudden injury that causes damage to the brain and may happen when there is a blow, bump, or jolt to the head. This is a closed head injury. A TBI can also happen when an object penetrates the skull. This is a penetrating injury. In my case I fell head first off of my bike while riding downhill. I was unconscious off and on for hours afterwards along with fractured ribs, a thigh injury, a wrist injury, and spent 24 hours in the ER and the hospital neuro-unit under observation. At the time I could not stand up without passing out.

How long does it take to fully recover from a TBI?

Depending on the severity of the injury, recovery time for a TBI may vary from a few weeks to six or more months. Each person reacts differently to injury and illness. Thus, recovery time will vary between individuals. The length of recovery time for TBI depends on how long a patient is unconscious and what parts of the brain are injured.

Are patients ever the same after a TBI?

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

My experience:

I would say it took a few years for me to feel “normal” again after my TBI in 2008. My main form of rehabilitation was writing books, reading a lot and maintaining my blogs.

Unfortunately, I have been prone to falls and further head injuries since then. I fell again with serious concussions in 2015, 2019 and 2021. My most recent concussion was most serious and caused permanent balance, memory and vertigo problems. I now use research, writing and game shows like Jeopardy to spur my memory and keep me sharp. I also love old movies, soft music, and nature shows on PBS. They really soothe my brain.

Does TBI affect IQ?

In the end, a brain injury does not make a person less intelligent. It does, however, make certain mental activities, such as learning, require more time and effort. This is because the brain works less efficiently after a brain injury.

My biggest pet peeve around my present condition is that others may look at me and assume I’m not quite all there. I am definitely as smart as I used to be, it just takes me longer to arrive at the answers. I do have trouble getting around because of my oxygen machine, but that doesn’t mean that I am someone to feel sorry for. I do not feel sorry for myself.

I think I have a great life here with Mike and my puppy Rasta, and this fantastic view of those beautiful Sangre de Cristo Peaks.

My experience with post-concussion syndrome

In case a few of you are concerned about my condition since my last concussion in April, I was finally able to see a great neurologist this past week in Denver. Why Denver? Because no one down here would even see me! One in Pueblo refused and would not say why, plus they took a month to say so! Health care? What health care?

So five months later a great MD at Blue Sky Neurology in Denver did a thorough assessment of my condition and concluded I was in very good shape considering my history of a serious traumatic brain injury (2008) and a number of concussions since. He said something I already know too well, head injuries often lead to more head injuries, especially if you take into account my difficulties maintaining my oxygen levels.

It’s official. I now have Post-Concussion Syndrome.

Here’s a summary of what that is according to the Mayo Clinic:

Persistent post-concussive symptoms, also called post-concussion syndrome, occurs when concussion symptoms last beyond the expected recovery period after the initial injury. The usual recovery period is weeks to months. These symptoms may include headaches, dizziness, and problems with concentration and memory.

Concussion is a mild traumatic brain injury that usually happens after a blow to the head. It can also occur with violent shaking and movement of the head or body. You don’t have to lose consciousness to get a concussion or experience persistent post-concussive symptoms. In fact, the risk of developing persistent post-concussive symptoms doesn’t appear to be associated with the severity of the initial injury.

In most people, symptoms occur within the first seven to 10 days and go away within three months. Sometimes, they can persist for a year or more.

The goal of treatment after concussion is to effectively manage your symptoms.

Persistent post-concussive symptoms include:

  • Headaches
  • Dizziness
  • Fatigue
  • Irritability
  • Anxiety
  • Insomnia
  • Loss of concentration and memory
  • Ringing in the ears
  • Blurry vision
  • Noise and light sensitivity
  • Rarely, decreases in taste and smell

Luckily I only have about half of these. Mostly it just feels like I’m slightly drunk a lot of the time with occasional falling down-type whirlies. Ironic though, I almost never drank alcohol before this and I never do now. I found it interesting to know that I also have whiplash in my neck from falling down so violently. It seems some physical therapy is in order. Unfortunately, I now find myself unable to keep quiet when I’m angry. No filter here 🙂 so I sometimes must apologize later for losing my temper. I’ve always been a pretty direct and honest person, now that’s a bit out of control… oops!

But I am surviving nicely with no more plans to fall on my head… Hope you are all doing better than me!