March is Brain Injury Awareness Month

There isn’t a lot I can do to “change the world” these days, but one area that I have too much experience with is serious brain injuries and how they can change your world. So this month I will try to educate everyone a bit about what I have learned on this topic.

A traumatic brain injury (TBI) is one where you lose consciousness for a period of time and often have a bleed in your brain afterwards. It is a sudden injury that causes damage to the brain and may happen when there is a blow, bump, or jolt to the head. This is a closed head injury. A TBI can also happen when an object penetrates the skull. This is a penetrating injury. In my case I fell head first off of my bike while riding downhill. I was unconscious off and on for hours afterwards along with fractured ribs, a thigh injury, a wrist injury, and spent 24 hours in the ER and the hospital neuro-unit under observation. At the time I could not stand up without passing out.

How long does it take to fully recover from a TBI?

Depending on the severity of the injury, recovery time for a TBI may vary from a few weeks to six or more months. Each person reacts differently to injury and illness. Thus, recovery time will vary between individuals. The length of recovery time for TBI depends on how long a patient is unconscious and what parts of the brain are injured.

Are patients ever the same after a TBI?

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

My experience:

I would say it took a few years for me to feel “normal” again after my TBI in 2008. My main form of rehabilitation was writing books, reading a lot and maintaining my blogs.

Unfortunately, I have been prone to falls and further head injuries since then. I fell again with serious concussions in 2015, 2019 and 2021. My most recent concussion was most serious and caused permanent balance, memory and vertigo problems. I now use research, writing and game shows like Jeopardy to spur my memory and keep me sharp. I also love old movies, soft music, and nature shows on PBS. They really soothe my brain.

Does TBI affect IQ?

In the end, a brain injury does not make a person less intelligent. It does, however, make certain mental activities, such as learning, require more time and effort. This is because the brain works less efficiently after a brain injury.

My biggest pet peeve around my present condition is that others may look at me and assume I’m not quite all there. I am definitely as smart as I used to be, it just takes me longer to arrive at the answers. I do have trouble getting around because of my oxygen machine, but that doesn’t mean that I am someone to feel sorry for. I do not feel sorry for myself.

I think I have a great life here with Mike and my puppy Rasta, and this fantastic view of those beautiful Sangre de Cristo Peaks.

Aging & Accepting New Limits…

I am ever amazed at the distance between knowing how much my health has changed and accepting those new limits. In the past seven years I have gone from a healthy 60-year-old to one who needs supplemental oxygen to breath and help with balance and stability while walking. My highest priority now is to not fall again and suffer another head injury. I’ve already had one traumatic brain injury and several serious concussions.

Acceptance releases everything to be what it already is.

On my birthday this year I learned in no uncertain terms that I cannot walk more than a few blocks, and that is with balance assistance at all times. I have been an avid walker my whole life. I would love to know how many miles I have walked in my 65+ years. I was inspired by Thoreau’s essay on “The fine art of sauntering.”

Walking was always my best way to contemplate my doubts and troubles. If I was upset I would go for a long walk along the Big Thompson River in Loveland, or around my neighborhood in Fort Collins. There I worked things out in my mind.

This is not an option now. I fell down in my garden a couple years ago and split my upper lip badly. Even short walks are out of the question, even if Mike is there to help. I am depressed and frustrated with this change in my lifestyle, and acceptance has never been my forte. I am one stubborn person!

However, I heard something the other day which stuck with me. It was about how we may decide to focus and go deeper into our spirituality when our physical abilities wane. This has already happened to some extent, because I’m that kind of person and I am stuck inside most of the time.

Luckily I have a phenomenal view from my bed, an 180 degree view of the Sangre de Cristos!

OK, I guess I can live with this.

The advantages of brain injury (Say what?)

Since my fate seems to be living with some fairly serious brain problems, I have been searching lately for the bright side of this apparently grim future I face. Some might find this attitude pathologically optimistic, but what the heck! If you can’t change it, why not go in search of the bright side?

First of all, I feel so just plain lucky to be living in this beautiful place with my loving little family, who understand endlessly my occasional forgetfulness, confusion and regular fatigue. My pup Rasta is especially sympathetic as he’s pushing 13 himself and can’t hear, can barely see or smell. He spends most of his days either sleeping or looking for a warm lap.

I have always run my mind a hundred miles an hour as a general rule, but not now. I tend to get busy early in the morning and wear out around ten or eleven. Then, for a change, I can be patient with myself… sometimes. I can settle down and meditate restfully for a while because I really cannot do anything else. I can now shut off my mind easier and just cruise mentally. I’m slowly learning my limits and now I try to only focus on one thing at a time.

Only so much brain space means less worrying and a lot less fear of death. Why? Because I have experienced hours of unconsciousness at this point and it isn’t such a bad thing. My mind simply shuts down with too much stimulation, and that limit is easy to reach. I have always enjoyed one-on-one conversations in my past, now that’s about all I can tolerate or enjoy. I enjoy focusing fully on others, just for shorter periods of time. After a nice talk with a friend, I love spacing out alone and contemplating our conversation. In fact I enjoy contemplating everything more.

I notice some of my senses are now heightened. My love of music, colors, and tastes are much more intense. I guess this is a function of where my head injuries were. Mine have been equal opportunity injuries both on the back and the sides of my brain.

Again I come back to one of my favorite quotes about the changes we may go through as we age:

“…we all know how this ends, so rushing through life is senseless. As our inner life grows ever more luminous, the chatter of the speed-and-greed world slowly fades, leaving us with greater peace, tranquility, quiet and contentment.” — Arthur Rosenfeld

What does a brain injury feel like?

In my last post I spoke of “enforced introspection.” Because of a few health concerns in the past few years, I have been living in a type of enforced introspection. I was reminded of this situation on Thursday with another accident and rude awakening. I went too long without my oxygen tube and passed out on the floor. This has happened a few times in the past few years.

What happens is not completely known to me, because I don’t remember anything when I regain consciousness. When I gathered my wits about me, I called for Mike, but he had just left for a while. I struggled to my feet eventually and got my oxygen. Wow, what a big bump I had on the back of my head! That’s the best indication I have of how hard I fell.

My health situation is complicated because I know the problem isn’t just an oxygen deficit. The combination of low oxygen and previous brain injuries, especially a traumatic brain injury in 2008 (brain bleed) make my consciousness level less dependable than what most others experience. This is my first life experience with a disability, and I would say I am not adjusting well. My but I can be so stubborn. My brain is not amused.

I have always been my own brand of unique and taken some pride in that, but this is a uniqueness I could do without… I now realize that previous brain injuries (TBI) have made me much more vulnerable to future ones!

The only thing interesting about this brain deficit is observing my varied levels of consciousness. For instance, right now, as I write this, I notice that the spelling part of my brain is not happy. I forget how to spell some of the simplest words, but as I keep trying, they come more easily. It all leaves me in a bit of a dream world, but in a good way. It doesn’t freak me out, because unconsciousness is not scary to me until I wake up and wonder what the hell happened?

I called my brother to tell him about my fall and he said, “What can you do about this?” As far as I can tell there is nothing to do except be sure to stay on oxygen all the time, but my spaced-out nature makes that more challenging than it sounds.

Stop trying? I’ll keep fighting until I can’t fight anymore!

Where is your brain injury?

Slowly but surely I’ve been fighting back from a serious concussion this past September. Some days are fine, others I just feel like sitting and staring off into space for hours. One thing is for sure, it is quite difficult for me to maintain a good conversation for more than an hour or two. My brain gets tired very quickly.

Today I want to share with you some new information to me. I was searching around the Internet and came upon this very interesting page from the Centre for Neuro Skills on brain function. I guess I did not realize how important it is to specify where your brain has been injured, in identifying what functions are compromised.

For example, my traumatic brain injury back in 2008 damaged my frontal lobe (in the forehead area). According to this documentation this section controls consciousness, how we initiate activity, judgments in daily activities, emotional response, expressive language and assigns meaning to the words we choose, word associations and memory activities.

After being unconscious for hours after my bike accident with a serious bleed inside my brain, I struggled for at least a year with judgment, my emotions, language, word meanings, spelling and memory. I never did remember my accident, just the aftermath, and then only barely.

As luck would have it, I had just decided to become a writer in 2006 so writing became my best brain exercise. I actually published my first book by the end of 2008! I’m nothing if not stubborn!

Yes, I got very slowly better and thought that part of my life was history until this past September when I fell backwards onto concrete and knocked a small hole in my skull and injured my left parietal lobe. This led to even more problems with spelling and vocabulary. I now need to ask my husband words all of the time, and that’s very frustrating to me. In fact everything mentioned on this list rings try to me, especially “the inability to plan a sequence of complex movements to complete a multi-stepped task.”

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I see now that brain injuries on top of previous injuries are the worst in terms of trying to get things done. At first I could only stare outside for hours. Luckily the views are fantastic up here! Believe it or not, I think coloring my mandalas has helped my brain a lot. It’s so hard for me to “be here now,” but I’m working on it every day.

Not to make excuses, but I’m pretty sure this new injury is making it much harder for me to put together my new memoir about moving to this beautiful new part of the country to retire. Luckily I don’t have to go to work, but even my new volunteer position at the local veterans nursing home could be a challenge at times. At least I’ll be among understanding friends.