Somehow I never pictured myself breathless and brain damaged at age 67. ‘Disabled’ did not occur to me ever, until things started happening to me. It took me an amazing length of time to believe that I was having trouble breathing. In fact, I didn’t discovery it myself. A very observant MD in Colorado City turned to me once when we were there for Mike’s health and said, “Are your lips turning blue? Let’s do a walking test.” For those unaware, a walking test is a simple walk around a doctor’s office where they test your O2 level before and after your block-long walk. I flunked, dipping far below 90 and yet I still insisted this could not be happening to me. Recently we went through the same test with my brother John, and yes, he denied it, and now he’s enjoying his supplemental O2.
My point is, unless you are literary hit over the head with a new disability (like a head injury?) it is very hard to accept that you may have a big new problem. I struggled against using oxygen at home for quite a while. I simply could not believe it, plus we Carters are known for extreme stubbornness. Now I can only go a couple minutes without it.
The head injuries started in my fifties and who knows, perhaps they were connected with shortness of breath. I know my most recent concussion were related to being out of breath. I went to look for something, forgot my oxygen, and ended up passed out for the floor. Unfortunately Mike was gone for a few days so when I came to I had to crawl over to my bed and get up there to lay down. I never forgot my oxygen again!
The aspect of disability I find both surprising and annoying is when others find it natural or even necessary to feel sorry for me. Some old friends have even stopped communicating with me. Talk about feeling written off! When I heard there is a new TV show called “Not Dead Yet” I thought, that’s me!
What I would like to share with all of you who think I’m done or doomed (aren’t we all?) is that, yes, my brain has changed, but sometimes it feels like it might be for the better.
I know I may have sometimes sounded pathologically optimistic here, but these days I rather enjoy my present state of mind. When I’m sitting staring out at our incredible views of the Sangre de Cristo mountain range, which I do a lot of, there is a certain non-reality that is a bit like being high without drugs. That I like. I also believe that in some strange way I may have become less judgmental and more intelligent by exchanging certain parts of my brain for a less precise and exacting attitude. Call it more flexible or easygoing, but I find that soothing. Perhaps my brain got tired of holding grudges.
Of course living with Mike has helped me a lot. I am definitely the worrywart in this partnership. We Carters are first-class worriers, expertly trained by a number of previous generations. I will never forget a few years ago when I was sitting in the living room listing my well-established list of worries for Mike. He had heard this list too many times, and I guess he was tired of it, so this time he sat back in his easy chair and said, “Who cares! Is worrying about these things going to change anything?” That made a lot of sense to my bruised and shaken brain…