Lessons in disability & compassion in action

Oh the things we can learn when accidents happen. After a lifetime of glorious health, I am now learning how challenging physical disabilities can be. From a healthy 60 year old a few years ago, I have become breathless and often confused. That popular phrase “I can’t breathe!” is a daily reality for me now and these difficulties have led to numerous falls and concussions. I am now working with a pulmonologist and a neurologist for lung disease and post concussion syndrome that causes great dizziness at times.

What does illness and suffering teach us? Compassion for others who suffer. The first time I spoke directly to Mike (my husband of 16 years) after meeting him through Match.com, he told me he suffered from Chronic Fatigue Syndrome (CFS). At that time I hadn’t the slightest idea what that was or how it might impact our lives. At first he tried to hide some of his symptoms from me, avoiding me when he felt especially bad. It was only later that I learned the crushing cruelty of this at-that-time undiagnosable disease that haunted Mike for decades. He went from a strong 35 year old who could run up mountains, to chronic fatigue that worsened with physical activity, but did not improve with rest, difficulties with memory, focus, concentration and dizziness that worsened with any movement from lying down, sitting or standing. Imagine how depressing that would be for you. And worse, few physicians would believe him. They showed no compassion and would simply say, “You’re just depressed” or “See a psychiatrist.” From this, Mike learned deep compassion for those who suffer with unexplainable illnesses and disabilities. This quote from Gandhi describes Mike’s life perfectly now:

“The best way to find yourself is to lose yourself in the service of others. The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problem.” – Mahatma Gandhi

One of my favorite sayings has been this for decades:

and Guanyin, the Chinese Goddess of Mercy, my daily reminder of compassion in action.

These are some of the most important lessons we can learn in life, and we are learning them well

Retirement: Fear or Adventure of a Lifetime?

keep calm and enjoy retirementI had an interesting conversation with a neighbor, who hopes to move to his house here in southern Colorado in the next year or so. The kids are all finishing college this year and he and his wife have built a nice “cabin” near us, and far away from his many responsibilities as a business owner back in Kansas.

Besides the usual, “Have I saved enough money?” fears, my new friend is quite worried about how he will fare in his new life here. He is born and raised German Lutheran with an amazing case of Type A personality. In other words, he likes to be doing something most of the time, preferably something productive, and often pushes himself with deadlines, hating delays and uncertainty.

Now you might say, who does like delays and uncertainty? Don’t we all like to feel in control of our fate? The only problem is, we aren’t. When it comes right down to it we could all fall ill or die today. Anything can happen to anyone at any time. Starting from that premise, what do I need to do today to further my own specific life goals?

I was also raised with that good old German authoritarian, “What have you produced today?” work ethic. Luckily I have also been given the wonderful opportunity to adjust to the idea of retirement very slowly, not all at once.

“What do we live for if it is not to make life less difficult for each other.”                                                                                                      – George Eliot

My husband Mike is my best teacher in this area. He had the misfortune to go from highly-skilled and productive engineering technician to Chronic Fatigue Sufferer in his mid-thirties. After many job losses and years of doctors and others not believing him, he somehow adjusted to the anger and frustration of having an illness that nobody seemed interested in defining or diagnosing properly. (New research!) 

The long-term effects of CFS forced Mike to retire early. It also taught him to have more patience with himself and everyone around him. First it made him very angry, then CFS made him a better person. In fact I’m fairly sure we wouldn’t get along so well if he had not been changed so much through his experience with this terrible illness.

retirement change new adventureHis patience and understanding provided me with the unique opportunity to change careers. At age 50 I started over as a freelance writer. After 25 years in the library profession, I finally gained enough confidence to believe that I could be a writer. With Mike’s great emotional and financial support I did what I had always wanted to do, but also feared. I could not have done this without Mike’s help.

That is why I now see ‘retirement’ as the next great adventure.

Happy RetirementWith love and support we can spend time finding out what it is we really want to try. What did you LOVE as a kid? What did you really want to be doing when you first went to work? You can do those things now. Sure it may not make money, but it could be lots of FUN!

Too many of us focus solely on the money issues surrounding retirement, and not enough on “What’s next for me?” Can I change? Would I like to be a more relaxed or patient person? Can I adjust to not producing something everyday? Can I change my focus to making life less difficult for others? Now that’s a good retirement goal!

I’m a newcomer to rural southern Colorado.  After two years I decided to compile a short journal about the ups and downs of moving from a good-sized city to rural America to build a passive solar retirement home in the foothills:

A Memoir of Retirement: From Suburbia to Solar in Southern Colorado

Please share this information with your friends if they are considering similar life changes. Feel free to contact me directly to discuss any of these challenges, and to order your own signed copies of any of my books!  Cheers, Laura Lee  (email me: MidlifeCrisisQueen@gmail.com)